This blog was created to document our experience dealing with Bailey, our 16 year old daughter's stroke. Until September 15th, she was a perfectly healthy, active teenage girl. She is a junior in high school this year. She has a part time job, many friends and a busy social life. She is involved with the marching band, cross country skiing and the school theater group. Her class schedule reads like that of my nightmares - Honors classes, Advanced placement classes and even a "college in school" physics class. She has a smile that shows itself with the slightest of provocation. She is happy, easy going and a bit goofy. Generally, there was no reason to expect any health issues and definitely we would not ever have even thought a stroke was a possibility.

So, this is our story. I am hoping it will help others who experience this sort of misfortune to understand they are not alone. Maybe they are feeling the way we do and will take some comfort our story.

Sunday, October 17, 2010

Only 36 hours to go

Bailey's home visit went terrifically. 

We got the house put back together enough to actually test out how she would do.  We had the couch and entertainment center in the living room and the toilet in the bathroom worked.  Her bedroom was back together and ready to go.

She and I cozied up under a blanket and watched a movie.  Around 8:30 Bay was ready for bed and didn't hesitate to say so.  I helped her get ready and tucked her in.  Paul had gone down to Grandma's to retrieve his stuff from staying there for a week so he wasn't at home.  When I said goodnight to Bay she asked if I was going to stay until Daddy got home.  I told her yes but that I believed she would be fine for a little while on her own.  She assured me that she was not comfortable with that idea and that I should stay til he got there.  So I stayed.

This morning my phone rang at 8.  It was Bailey.  She was awake, bored and hungry.  Apparently Paul was still sleeping and she wanted to know if it was OK for her to get up and get herself something to eat.  I said sure, if she promised not to fall.  She was so happy to hear that it was OK for her to do normal things all by herself. 

Of course I was nervous so I called Paul to tell him she was up and that he should keep an ear open.  By time he answered his phone he had already heard her wandering around and gone downstairs to check on her. 

Turns out that she did find.  No falls, no trips, no issues - and she even washed her own dishes.

At noon Zach came over with lunch and a movie.  The lounged on the couch and enjoyed their show while Paul and I putzed around cleaning and such.  It was so calm and ordinary it was almost easy to forget that she has the struggles that she does.

No comments:

Post a Comment