This blog was created to document our experience dealing with Bailey, our 16 year old daughter's stroke. Until September 15th, she was a perfectly healthy, active teenage girl. She is a junior in high school this year. She has a part time job, many friends and a busy social life. She is involved with the marching band, cross country skiing and the school theater group. Her class schedule reads like that of my nightmares - Honors classes, Advanced placement classes and even a "college in school" physics class. She has a smile that shows itself with the slightest of provocation. She is happy, easy going and a bit goofy. Generally, there was no reason to expect any health issues and definitely we would not ever have even thought a stroke was a possibility.

So, this is our story. I am hoping it will help others who experience this sort of misfortune to understand they are not alone. Maybe they are feeling the way we do and will take some comfort our story.

Saturday, September 25, 2010

A helluva way to celebrate a birthday

Monday is our Bailey's 17th birthday.  Spending it in the hospital is not her idea of a great celebration and she has made sure I know her opinion of it.  We are having a party for her tomorrow but she has a few opinions about that as well.  She says "I don't want gifts."  I asked her why and she went on to explain how she thinks people will give her presents that are "all like get well Bailey" and not "happy birthday Bailey."  She has it in her head that these two things need to be kept completely separate.

I didn't really understand this until I was relating this story to my sister Amber who asked me if I thought it was more about the type of gifts?  Maybe she thinks that the presents will all be "in rehab" gifts instead of "post rehab" gifts?   I think Amber is onto something.  It makes sense when I recall other conversations I have had with Bay in the past few days.  I had several coupons for 10 dollars off at Kohls and I told her I was going to buy her some t-shirts and work out clothes for rehab and she told me no, that she wanted "after" clothes.

I wonder if this is typical of people in rehab?  Or is it just my girl who thinks this way?

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