This blog was created to document our experience dealing with Bailey, our 16 year old daughter's stroke. Until September 15th, she was a perfectly healthy, active teenage girl. She is a junior in high school this year. She has a part time job, many friends and a busy social life. She is involved with the marching band, cross country skiing and the school theater group. Her class schedule reads like that of my nightmares - Honors classes, Advanced placement classes and even a "college in school" physics class. She has a smile that shows itself with the slightest of provocation. She is happy, easy going and a bit goofy. Generally, there was no reason to expect any health issues and definitely we would not ever have even thought a stroke was a possibility.

So, this is our story. I am hoping it will help others who experience this sort of misfortune to understand they are not alone. Maybe they are feeling the way we do and will take some comfort our story.

Tuesday, September 21, 2010

Another big move

Today Bailey will be transferred to the Sister Kenny Institute. It is an inpatient rehab facility where she will have daily (Monday through Saturday) therapies.  They will include Physical, Occupational and Speech.  Sister Kenny is set up with room that are more like itty bitty studio apartments then hospital rooms.  They try to instill some sort of independence in the patients while working on the physical rehab.

The only really sucky part is that I am fairly certain they are going to kick me out every night.  I will no longer be able to respond to her cries in the night and rub her back when she gets scared.  I am having a hard time swallowing this.  I may have to hide in the bathroom at bedtime and sneak out to sleep on the floor in her room!

I am told we can get evening and weekend passes to take her off the unit.  Not necessarily out of the hospital but we will at least get to give her a change of scenery.
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