This blog was created to document our experience dealing with Bailey, our 16 year old daughter's stroke. Until September 15th, she was a perfectly healthy, active teenage girl. She is a junior in high school this year. She has a part time job, many friends and a busy social life. She is involved with the marching band, cross country skiing and the school theater group. Her class schedule reads like that of my nightmares - Honors classes, Advanced placement classes and even a "college in school" physics class. She has a smile that shows itself with the slightest of provocation. She is happy, easy going and a bit goofy. Generally, there was no reason to expect any health issues and definitely we would not ever have even thought a stroke was a possibility.

So, this is our story. I am hoping it will help others who experience this sort of misfortune to understand they are not alone. Maybe they are feeling the way we do and will take some comfort our story.

Saturday, November 6, 2010

School - A week later

As it turns out my return to high school was short lived. Bailey wanted independence and the school was willing to make as many concessions on her behalf as needed in order to get it for her. She has assigned note takers, people helping carry her bag, reduced work load and any front row seat she wants. Isn't it every kids dream to be allowed to sit in the front row?

She spent all day at the school on Thursday because I had to head north to help remove a tree from the cabin roof. She said that things went really well but she was worn out. So worn out, in fact, that on Friday morning she got up, got dressed, came to the table to eat and burst into tears. I asked her what was wrong and she said "I can't do it. I am so tired I just want to go back to bed." So this is what we did - went back to bed. She had therapy Friday afternoon anyway so it was important that she be well rested.

Her therapy has been going well but it is hard to get her to do her at home stuff. She is just so tired and the lack of short term memory is definitely not helping.

No comments:

Post a Comment